For me it seems that when things started to steadily got so much better, I was able to get into a routine and just do what needed to be done. I apologize for not keeping everyone up to date, it is nice to hear that people were reading this and when I was not blogging sending me emails and such checking in. THANK YOU for caring and thinking about us, the appreciation we have for all the love and positive thoughts is what has gotten us as far as we are!!
Our sweet boy has really chosen his own path, the slow and steady one but none the less we have gained strength and patience. Asher has done nothing but amaze us every day, every week. After a few weeks of being on the nasal canula he decided he was done…ummm yes that little 3+ pound baby decided that he was done with it. Taking the canula out of his nose and either setting it upon his nose or chin/mouth area was where he thought it should be, NOT his little nose. Asher has now been off the canula for almost 2 weeks and his episodes of Apena and Bacarydia have become less and less, I actually think the last time he had a minor episode was 2/23. Even those small episodes that he had were all ones that he was able to recover himself.
Asher’s weight gain has been that of a snail. I think it might be just the way our babies are, small and slow growers (Saige is 2 and is only 24lbs) but when a baby is born as small as Asher was, gaining weight is a big big part of getting better. We have continued to battle the belly issue and have had to take very small baby steps when increasing the calories in his food as well and get him off the continuous feeds and onto a gavage feeding. After waiting it out with the Cpap gone and not munch of a belly change Dr E and Dr B decided to take a chance and increase the calories into his food. Asher steadily begin to pack on the oz. Since he was tolerating the higher calorie breast milk so much better, his feedings were slowly condensed. Asher has tolerated all of these changes very well. He hit the 4lb mark on 2/15, less then a month (by a few days) then it took him to get into the 3lb club.
Oh how I have grown….
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